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Kaiser Permanente and Teen Vanquish Cancer During Pandemic

Jacob Knudsen, 13 (pictured), is one of thousands of cancer patients whose care continued safely and without interruption at Kaiser Permanente Northern California despite the unfolding COVID-19 pandemic that presented challenges for health care providers across the country.

When 12-year-old Jacob Knudsen first began feeling pain in his right knee last summer, he and his family thought it was growing pains or a fracture from a recent roller-skating fall, at most.

The Windsor, California, family couldn’t have imagined that their baseball-loving oldest son would spend his next school year fighting bone cancer and going through chemotherapy amid a pandemic.

Jacob, who has since turned 13, is now cancer-free and back to practicing hitting baseballs with his dad. Jacob’s mother, Isabel Knudsen, attributes Jacob’s progress to the fast diagnosis and treatment from his Kaiser Permanente doctors and nurses.

“They gave us strength we didn’t know we had,” Knudsen said. “The care Jacob received was wonderful.”

Quick Diagnosis, Compassionate Care

Last September, Jacob’s pediatrician, Vanessa Desousa, DO, ordered X-ray scans and a follow-up CT scan after the swelling and pain in Jacob’s knee persisted for over 6 weeks following a roller-skating fall. Within a week, the family got a call from Andrew Fang, MD, an orthopedic surgeon at the Kaiser Permanente South San Francisco Medical Center, who suspected that Jacob had osteosarcoma and ordered a biopsy, which confirmed the diagnosis.

“I thought that maybe, at worst, it was a fracture in my knee, and it turned out to be a lot worse,” Jacob said. “I knew I had to be really strong.”

On October 4, Jacob started his first 2 rounds of chemotherapy at the Kaiser Permanente Oakland Medical Center under the care of Lisa Goodman, MD, a pediatric hematologist-oncologist.

Jacob spent the majority of the next 8 months mostly in and out of the hospital, receiving chemotherapy treatments. He underwent surgery in December to remove his tumor and replace his right knee and most of his femur with a titanium prosthetic.

Jacob said he was terrified, and that the drugs made him feel like a slow baby version of himself.

Throughout his treatment and recovery, Jacob found solace in striking up conversations about sports and life with his doctors, nurses, and other friends he made while at the hospital.

“I could be myself with them,” Jacob said. “It was like having a second family. It’s just incredible how much support and kindness these doctors and nurses give you.”

Dr. Goodman said she was impressed by Jacob’s positive, talkative nature and his commitment to recovery.

“He did his physical therapy with incredible devotion and recovered faster than any kid I’ve ever seen,” she said.

Isolation and COVID-19

Battling cancer weakens the immune system, so Jacob and his family had to take extra precautions to make sure he didn’t catch a cold or the flu. The family became used to increased cleaning and disinfection of anything around Jacob. His contact with the outside world became very limited aside from the occasional trip to the movie theater and visits from his friends and family.

When the pandemic started to unfold in March during Jacob’s last few rounds of chemo, his isolation increased as Kaiser Permanente enacted new protocols to keep patients safe.

“We were terrified,” Isabel Knudsen said. “Having your child sick with cancer is terrifying. Having to go through that during a pandemic is extra awful.”

New guidelines, implemented by Associate Executive Directors of The Permanente Medical Group Nancy Goler, MD, and Brian Missett, MD, meant that only one family member could visit a cancer patient at a time at Kaiser Permanente facilities. New changes also included implementing a video care first strategy and screening all visitors for COVID-19 symptoms before allowing them into the buildings.

“Our main goal through the pandemic was to make sure there were no disruptions for our cancer patients,” said Dr. Missett, a radiation oncologist at the Kaiser Permanente Santa Clara Medical Center. “The restricted visitation understandably frustrated some family members. But we had to enact it to keep everyone safe.”

To limit Jacob’s potential exposure to the novel virus, only one nurse would come to check on him, and his doctors started to do their check-ins over video.

The extra isolation was tough, but Jacob said he feels that the pandemic also brought him closer to other people.

“For me, it was kind of like everybody was now getting a piece of my life — the isolation and fear that me and other cancer patients go through,” Jacob said.

On May 8, Jacob rang a bell during a ceremony at the Kaiser Permanente Oakland Medical Center marking the end of his treatment and his new cancer-free status.

“It’s crazy to say that it’s done,” Jacob said. “I’m just so thankful to have made it.”

Tags

cancerCOVID-19pediatricsteens
This Post Has 8 Comments
  1. Great story. And perfect timing! I turned off the evening news just now, saying to myself that I need to find something positive to change my focus. And Jacob’s story came up. Jacob, you’re amazing! My prayers go out to you and his family for continued health and happiness. Thank you for sharing your story and your smile.

  2. The example Jacob set for all of us has helped us get through this amazing young man’s cancer treatments. We are so proud of him and grateful to his amazing medical team .

  3. Wow Jacob,
    I feel so blessed to read your story! Praise God that you came through that so strong. God’s continued blessings on you and your family! Since I work for Kaiser it makes me proud that you were taken care of by everyone involved so beautifully! I hope you can play baseball real soon!
    Paula

  4. Thank you for sharing Jacob’s story. I would also like to commend the KP Pediatric Oncology Team at Kaiser Oakland for treatment of our son’s cancer despite the pandemic. Drs. Tran, Goldsby, Maroofi, and Goodman, our Case Manager Marta Clavo RN and the 12th Floor Pedi Oncology team kept us informed and safe throughout a challenging clinical course. Despite all the numerous changes to policies throughout the pandemic, the nurses on the 12th floor went above and beyond to make the best of the situation. All and all we are grateful to all who helped our son overcome his challenge. I’m proud to be not only a KP member but proud to work for KP.

  5. Way to go, Jacob! Your story really touched me – how courageous and inspiring you are, especially at such a young age. You fought this battle head on, determined to beat it, and you did! Your positive, “I can do this” attitude helped you keep going, even when the going got tough. I’m so happy to hear you’re back practicing baseball already and wishing you a great summer. And kudos to your outstanding care team at KP, and all of the new friends you made along the way. Thank you for sharing your story. 🙂

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